Back to Coming to Terms with Disabilities
Job Accommodation Network
The President's Committee on Employment of the Handicapped
(PCEH) (see term for definition) has established the Job
Accommodation Network (JAN), a toll-free computerized
information system for employers who want to hire qualified
applicants who are disabled, but who are unsure about job
accommodations needed for the potential employee. JAN enables
employers (and eventually these applicants) to share
information on a national scale about specific proven solutions
to job accommodation problems. The project's data base is at
the West Virginia University Research and Training Center, a
grantee of the National Institute of Handicapped Research. To
receive accommodation information, employers can call (800)
JAN-PCEH, except in West Virginia where the number is 1-304-
293-7186.
Job Index (AFB)
Initiated in 1982 by the American Foundation for the Blind
(AFB), Job Index is a national data and networking resource on
the competitive employment of persons who are blind or visually
impaired. It is a unique information source on how people with
visual disabilities heard about, applied for, obtained, and are
productively managing their jobs. As a result of detailed
responses from employees in a wide range of business,
government, and industrial settings, the Job Index contains 500
listings, and includes information on job title, how the job
was attained, tasks performed, assistive devices used,
financing of assistive devices, accommodations made by the
employer, educational and previous work history, rehabilitation
training received after onset of visual handicap, and career
path planning. The Job Index offers the respondent either named
or anonymous listing, and provides potential employers and
employees with specific contacts and examples in the areas of
networking (for speakers or for recommendations), application
and financing of new technology , role modeling (non-
traditional jobs), and state and local policy planning.
For more information, contact :
American Foundation for the Blind
15 West 16th Street
New York, New York 10011
(212) 620-2037
TDD (212) 620-2158
Job Training Partnership Act (JTPA)
The Job Training Partnership Act (JTPA) replaced the Comprehensive
Employment and Training Act (CETA) in 1983 as the National Program
to prepare youth and unskilled adults for the labor force, and to
afford job training to economically disadvantaged individuals and
others facing serious barriers to employment. The program was
established with the passage of Public Law 97-300.
For more information, contact :
New York State Department of Labor
Department of Labor Building
State Office Campus
Washington Avenue
Albany, New York 12240
(518) 457-0361
Katie Beckett Law (and New York State Implementation)
In November, 1981, President Ronald Reagan drew attention to a
three-year old child, Katie Beckett, who was then hospitalized in
the State of Iowa. Katie was being treated in a hospital at a
monthly cost of $12, 000 to $14,000, despite the fact that her
medical condition could have been treated less expensively at home.
She was eligible to receive Supplemental Security Income (SSI)
because her medical condition was determined to be chronically
disabling and because her income (without regard to her parents'
income) was determined to be below the established limit ;
therefore, Medicaid was paying for the full cost of her
hospitalization. However, if Katie returned home to live with her
parents, their income would be considered, and since it was in
excess of SSI eligibility levels, Katie would have lost both SSI and
Medicaid so that her parents would have had to pick up the costs of
her care at home. Because of the widespread publicity given to the
Katie Beckett case, and in recognition of the cost savings that
would accrue in the Medicaid program if she were to move home,
Congress enacted, as part of the Federal Tax Equity and Fiscal
Responsibility Act of 1982 (P.L. 97-248), a provision which gives
states the option of providing Medicaid coverage to certain children
at home.
ln 1984, Chapter 906 was enacted by the New York State Legislature
to expand medical assistance (Medicaid) eligibility to certain
severely ill or children with disabilities living at home, provided
that the cost of home care is no more expensive than comparable
institutional care. The Commissioner of Social Services was directed
to assess the feasibility of providing home and community-based
services (while retaining medical assistance eligibility) for
persons who are 18 years of age or under, and who are: physically
disabled according to the Supplemental Security Income program
criteria; hospitalized or receiving care in a skilled nursing
facility (SNF) for at least 30 consecutive days, or receiving care
in an Intermediate Care facility (ICF) for persons who are
developmentally disabled for at least 180 consecutive days; in need
of the level of care provided by an SNF or ICF for those who are
mentally retarded; capable of being cared for in the community, if
provided with case management services and / or respite care
services ; ineligible for medical assistance, if living in the
community, because the income and resources of responsible relatives
would be deemed available to such persons, causing them to exceed
the income or resources eligibility level for such assistance;
capable of being cared for at less cost in the community than in the
appropriate institutional setting; and able to meet other criteria
to be established by the Commissioner in order to run the program.
For details of this program, contact your local Department of Social
Services or:
New York State Department of Social Services
40 North Pearl Street
Albany, New York 12243
(518) 474-9428
Kidney Disease
Kidneys are organs responsible for filtering or cleansing the blood,
and secreting waste from the body to the bladder in the form of
urine. Kidney disease is a general term that includes diseases
ranging from urinary tract infections, to kidney stones (a hardening
of mineral salt around organic material found in the kidney), to
more serious disorders such as polycystic kidney disease-- a
progressive hereditary disease in which cysts that increase in size
form in the kidneys and may eventually cause kidney failure;
nephrosis-- a condition that causes the kidneys to remove too much
protein from the blood as it is filtered through the kidneys,
causing the kidneys to retain excess amounts of salt and fluid
resulting in swelling around the eyes, abdomen, ankles and hands;
and, chronic kidney failure--gradual and permanent loss of kidney
function which allows harmful waste products and fluid to accumulate
in the body resulting in growth stops or delays, elevation of blood
pressure, fatigue and poor appetite.
For more information, contact :
American Kidney Fund
7315 Wisconsin Avenue, Suite 203E
Bethesda, Maryland 20814
(301) 986-1444 or (800) 638-8299
Kidney Foundation of Northeast New York, Inc.
4 Airline Drive
Albany, New York 12205
(518) 869-4666
Kids' Project
The Kids' Project, which is sponsored by the New York State Office
of Mental Retardation and Developmental Disabilities, is a puppet
show that is designed to teach non-disabled children about various
disabilities, and to show them that being disabled never stopped
anyone from being a good classmate, a good friend and shouldn't keep
a person from leading a satisfying life. The puppet show, usually
presented by two specialists in the field of disabilities, features
five disabled and two non-disabled puppets which teach what it's
like to be blind, deaf, mentally retarded, to have cerebral palsy or
a learning disability. The puppets do not aim at preaching that "we
are all alike. " What they want children to learn is that even
though the persons who are disabled are different, they can lead
full and satisfying lives and instead of being ignored, they are
potential playmates and even friends.
For more information, contact :
New York State Office of Mental Retardation &
Developmental Disabilities
44 Holland Avenue
Albany, New York 12229
(518) 474-6601
Kneeling Bus
A term used to describe a specially designed bus with a hydraulic
device that lowers the right front section in order to bring the
steps closer to the ground. This makes entry and exit for persons
who are elderly and persons who are disabled much easier.
Language Disorders
Language Disorders include, but are not limited to, impairment or
deviant development of comprehensive and/or use of spoken, written
and/or other symbol system (e. g. sign language, augmentative
communication systems, etc. The disorder may involve (1) the form
of language (phonologic, morphologic and syntactic systems), (2)
the content of language (semantic) system and / or (3) the
function of language in communication (pragmatic) system in any
combination.
For more information, contact :
New York State Speech-Language-Hearing Association
111 Washington Avenue 6th Floor
Albany, New York 12210
(518) 463-5272
Learning Disabilities
In 1975, the Federal government defined learning disabilities in
Public Law 94-142, The Education of All Handicapped Children Act, (
see term for definition) as follows: " Specific learning disability
means a disorder in one or more of the basic psychological processes
involved in understanding or in using language, spoken or written,
which may manifest itself in an imperfect ability to listen, think,
speak, read, write, spell, or to do mathematical calculations. The
term includes such conditions as perceptual handicaps, brain injury,
minimal brain dysfunction, dyslexia, and developmental aphasia. The
term does not include children who have learning problems which are
primarily the result of visual, hearing or motor handicaps, mental
retardation, emotional disturbance or environmental, cultural, or
economic disadvantage."
In 1981, the Rehabilitation Service Administration accepted learning
disabilities in adults as a medically recognizable disability which
enabled such individuals to receive job training services under the
following definition: " Specific learning disabilities is a disorder
in one or more of the central nervous system processes involving
perceiving, understanding and/or using concepts through verbal
(spoken or written language) or nonverbal means. This disorder
manifests itself with difficulties in one or more of the following
areas : attention, reasoning, memory, communicating, reading,
writing, spelling, calculation, coordination, social competence, and
emotional maturity. The resulting disorder must result in a
substantial handicap to employment. "
Although defined in these instances, each child, adolescent or adult
with learning disabilities shows a different combination and
severity of problems. Characteristics used in diagnosing learning
disabilities include: short attention span, poor memory, difficulty
following directions, inadequate ability to discriminate between and
among letters, numerals, or sounds, poor reading ability, eye-hand
coordination problems, difficulties with sequencing, disorganization
and numerous other problems which may affect all of the sensory
systems.
For more information, contact :
New York Association for the Learning Disabled
155 Washington Avenue
Albany, New York 12210
(518) 436-4633
Child Research and Study Center
The University at Albany, SUNY
1400 Washington Avenue
Albany, New York 12222
(518) 442-3770
Foundation for Children with Learning Disabilities (FCLD)
P. O. Box 2929
Grand Central Station
New York, New York 10016
(212) 687-7211
National Network of Learning Disabled Adults (NNLDA)
808 North 82nd Street, Room #F2
Scottsdale, Arizona 85257
Least Restrictive Environment (LRE)
The concept of the least restrictive environment (LRE) is
stated in Federal law (see "Public Law 94-142") and implemented
through efforts of states and local school districts. LRE
assures the opportunity for each student with an educational
handicap to receive programs and support services which
consider each child on an individual basis. In other words,
children should not be placed into a more segregated setting
because that is the only place that the appropriate program
exists or because of lack of space in public school buildings.
A child should only be placed into a more restrictive setting
when it is proven by the CSE that the child cannot benefit from
being in an integrated environment.
For more information, contact :
Office for Education of Children with Handicapping Conditions
New York State Education Department Room 1073
Education Building Annex
Albany, New York 12234
(518) 474-5548
Bureau of Protection and Advocacy
New York State Commission on Quality of Care
99 Washington Avenue, 10th Floor
Albany, New York 12210
(518) 473-7378
Libraries for the Blind and Physically Handicapped
The Pratt-Smoot Act of 1931 established a national library program
to be coordinated by the Library of Congress to serve adults who are
blind. Although service was limited initially to these individuals,
federal legislation in 1952 broadened eligibility to include
children in 1966, and those with physical handicaps who were unable
to read printed materials. Regional libraries were established as
part of the nationwide network coordinated by the National Library
Service for the Blind and Physically Handicapped of the Library of
Congress to serve patrons of all ages who are visually and / or
physically disabled.
The New York State Library for the Blind and Visually Handicapped (
serving the 55 counties of Upstate New York) and the New York Public
library for the Blind and Physically Handicapped (serving New York
City and Long Island, with subregional libraries in Suffolk and
Nassau Counties) are part of a network of 58 regional libraries
across the country. The major objective of the regional library is
to provide print-handicapped individuals (those who have difficulty
reading printed material, holding a book, or have another condition
which impedes access to printed materials) with access to the same
library programs and services available to non-print handicapped
persons. While all regional libraries receive the same materials
from the National Library Service, the level of services able to be
provided varies.
The New York State Library for the Blind and Visually Handicapped,
located in Albany, has the facilities to provide, among its numerous
services, books in Braille, disc, and cassette format as well as
specially designed playback equipment which are available without
charge to eligible readers. Upstate Update, an informational
newsletter, is also available. In addition, a Public Service Center
in the State Library allows patrons access to the extensive print
and microfiche collections which they may use with the assistance of
reading aids. The library's Kurzweil Reading Machine uses a
computer-drive scanning device and voice synthesizer to read printed
material to the user.
The New York Public Library for the Blind and Physically
Handicapped, along with its subregional libraries, can provide books
and magazines in Braille, disc (record) and cassette form to
individuals, of all ages, with the following certified disabilities
: visually impaired, totally blind, physically handicapped, learning
disabled. Both libraries provide special recorders and tape players.
For information on how to access this library system, contact :
New York State Library for the Blind and Visually Handicapped
Cultural Education Center
Empire State Plaza
Albany, New York 12230
(800 342-3688 (message recording number to request books,
report service problems, and notify the Library of such things
as change of address)
(800) 342-3111 (information/reader advisory number)
National Library Service for the Blind and Physically
Handicapped
Library of Congress
Washington, D. C. 20542
(202) 287-5100
New York Public Library for the Blind and Physically
Handicapped
166 Avenue of the Americas
New York, New York 10013
(212) 925-1011 (M-F 9-5)
(212) 925-9699 (24 hour answering machine)
Limited Mobility
A term which generally refers to the inability of an individual to
move about easily because of a physical disability. This term also
refers to the situation which exists due to the lack of accessible
transportation systems and services which severely limits the
ability of persons who are elderly and disabled to travel easily
locally and statewide.
Long Term Care
A general term used to describe the services provided in any type of
facility where individuals or patients stay for longer than 30 days
at a time. A hospital is generally not a long term care facility.
Long Term Home Health Care Program
Article 36 of the Public Health Law, effective April 1, 1978,
describes a coordinated plan of care and services provided at home
to persons who are infirm or disabled and who would require
placement in a hospital or residential health care facility for an
extended period of time if such program were unavailable. Such
programs shall be provided in the person's home or in the home of a
responsible relative or other responsible adult.
Lou Gehrig's Disease (Amyotrophic Lateral Sclerosis)
Amyotrophic lateral sclerosis is a rapidly progressive neuromuscular
disorder of adults resulting from degeneration of the motor nerves
in the spinal cord and brain stem, and leading to atrophy (wasting
away or shrinking) of the muscles controlled by these nerves in the
hands, arms, feet, legs, and tongue. It can produce a combination of
both flaccid (weakness, lack of control) and spastic (involuntary
muscular contraction) paralysis which may cause difficulty in
swallowing, speaking and breathing.
For more information, contact :
Amyotrophic Lateral Sclerosis Association
185 Madison Avenue
Suite 1001
P. O. Box 2130
New York, New York 10016
(212) 679-4016
Lowe's Syndrome
Also known as the oculo-cerebrorenal (eye-brain-kidney) syndrome,
Lowe's Syndrome is a rare genetic condition affecting males which
results in multiple handicaps. Symptoms may include congenital
cataracts (a clouding of the lens of the eye which obstructs the
passage of light), glaucoma (pressure within the eyeball that can
result in the gradual loss of vision), intellectual impairment,
hypotonia (poor muscle tone), renal tubular dysfunction (a kidney
disorder resulting in the abnormal loss of nutrients in the urine),
acidosis (a disturbance of the body' s acid-base balance which can
be a serious threat to health), a tendency to develop rickets (a
disease characterized by soft and malformed bones) and other bone
problems, short stature, and in some cases, seizures.
For more information, contact :
Lowe's Syndrome Association
222 Lincoln Street
West Lafayette, Indiana 47906
(317) 743-3634
Lupus (Lupus Erythematosus)
Lupus erythematosus, or Lupus as it is commonly known, is a chronic
inflammatory disease affecting connective tissue. It may affect only
the skin in some people; in others it may affect virtually any organ
in the body, including the skin, joints, kidneys, brain, lungs,
heart, blood and immune system. Lupus can be present in varying
degrees of severity, from mild to severe. There are two main types
of Lupus, depending on which part of the body is affected. The first
type is called Discoid Lupus. It involves only the skin, usually on
the face, neck, and sometimes the upper chest. It may cause raised,
scaly areas of the skin. The second type of Lupus, usually more
severe, is called Systemic Lupus. It involves the internal systems
of the body and organs. A skin rash may be present in both types. It
is not contagious nor is it thought to be hereditary. Since Systemic
Lupus can affect any part of the body, there are a great variety of
symptoms that can be present. The most commonly present symptoms
are: fatigue, pain in the joints or chest, unexplained low-grade
fever, red skin rash (often a butterfly shaped rash across the
bridge of the nose and cheeks, frequently occurring after sun
exposure), abnormal hair loss, and, blanching of ringers after
exposure to cold.
For more information, contact :
Lupus Foundation of America, Inc.
Central New York Chapter
423 Onondaga Street
Syracuse, New York 13202
(315) 471-7788
Lupus Foundation of America, Inc.
Northeastern New York Chapter
126 State Street
Albany, New York 12207
(518) 465-3603
SLE Foundation, Inc.
95 Madison Avenue
Suite 1402
New York, New York 10016
(212) 685-4118
Westchester Lupus Foundation, Inc.
45 Wall Street
Valhalla, New York 10594
(914) 948-1032
Mainstreaming
A term, when used regarding special education (see term for
definition), that refers to the integration of children with
disabilities into programs and courses of study attended by their
non-disabled peers. This may be done for purposes of academic and/or
social reasons.
Means Test
A procedure for determining eligibility of applicants for various
human services programs, on the basis of ability to pay. Criteria
include income (i.e. employment, investments, Social Security,
pension) and necessary living (i. e. rent, food) expenses.
Medicaid
Medicaid (Medical Assistance Programs-- Title XIX) is a federally-
aided, state-operated and administered program, to provide physical
and related health care services to persons with low incomes.
Persons with disabilities may be eligible for Medicaid on the basis
of their income. Eligibility is determined by the State program of
public assistance (welfare) on the basis of broad federal
guidelines, so there are geographic differences between eligibility
requirements and types of services covered. Each state establishes
its own eligibility requirements for Medicaid. Generally, persons
may be eligible if they are receiving welfare or other public
assistance benefits, or Supplemental Security Income (see term for
definition), or are blind or disabled. Individuals with higher
incomes may be eligible for Medicaid Supplemental Medical Care
Assistance, or their children may be eligible if medical expenses
exceed a given percentage of their annual income.
Further information is available from your local or state
welfare or public assistance office, or :
New York State Department of Social Services
40 North Pearl Street
Albany, New York 12243
(518) 474 9516
Medicare
A nationwide, federal health insurance program (Title XVIII)
designed to serve everyone over 65 years of age and persons
who are disabled under 65 years of age who have been
entitled to receive Social Security disability benefits for
a total of 24 months; or who need dialysis treatments or
kidney transplant because of permanent kidney failure. The
program is not based on income, but is available regardless
of financial need. The Medicare program has two parts: Part
A-- hospital insurance at no cost that helps pay for care
while in the hospital and for related health care services
after leaving the hospital; and Part B-- voluntary medical
insurance at a monthly premium that helps pay doctor bills
and other approved medical services.
More information about Medicare is available from your local
Social Security Office, or by writing to:
Health Care Financing Administration
Inquiries Branch
Room 1-N-4, East Lowrise Building
Baltimore, Maryland 21235
(518) 594-9622
Mental Illness
A term used to describe a chronic or intermittent disability
which is associated with an impairment of one or more
important areas of functioning such as social behavior,
rational thinking, feeling or judgment. Symptoms and types
of mental illness are varied from individual to individual,
and may include neurological, biochemical, genetic and
perhaps viral reasons, making diagnosis and treatment
difficult. Mental illnesses include: neurosis-- a functional
disorder that can be in the form of anxiety, reactive
depression, hysteria and obsession which arises as a result
of stress and anxieties in the individual's environment;
psychosis-- a mental illness arising in the mind itself (as
opposed to neurosis in which the mind is affected by factors
in the environment) which is so severe that it involves loss
of contact with reality; and schizophrenia (see term for
definition).
For more information contact the local Office of Mental Health,
Psychiatric Center, or :
New York State Office of Mental Health
44 Holland Avenue
Albany, New York 12229
(518) 474-6567
(518) 447-9650 Capital District Regional Office
(315) 428-4542 Central New York Regional Office
(914) 452-1540 Hudson River Regional Office
(516) 434-5311 Long Island Regional Office
(718) 262-4981 New York City Regional Office
(716) 885-5014 Western New York Regional Office
Alliance for the Mentally Ill of New York State
P.O. Box 746
New Paltz, New York 12561
(914) 255-5134
(212) 242-7988
Mental Health Association in New York State, Inc.
75 New Scotland Avenue
Albany, New York 12208
(518) 434-0439
Federation of Parents Organizations for the
New York State Mental Institutions, Inc.
2175 Wantagh Avenue
Wantagh, New York 11793
The Alliance of People With Psychiatric Labels
826 Euclid Avenue
Syracuse, New York 13210
(315) 475-4120
Mental Retardation
This term refers to subaverage general intellectual functioning (as
defined by various tests which measure intelligence) in, or
associated with, impairments in adaptive behavior (adjustment to
everyday life), and manifested during the developmental period (
birth to age 22). Persons with mental retardation are those who
mature at a below average rate, and experience unusual difficulty in
learning and social adjustment. Difficulties may occur in learning
communication, social, academic, and vocational skills. The amount
of difficulty experienced depends upon the person's age, mental
ability, and developmental stage. Persons who are Mildly retarded
are in many respects quite similar to their typical peers. While
still young their retardation is not readily apparent. Persons who
are Moderately retarded are more obviously handicapped, and their
retardation is usually apparent before school age. Persons Severely
or profoundly retarded have obvious intellectual impairments and
frequently have other handicaps such as cerebral palsy, epilepsy,
blindness, or deafness. Mental retardation is not a disease, and
although there are more than 250 specific identified causes, in most
cases, the exact reason is unknown.
For more specific information contact:
New York State Association for Retarded Children, Inc.
393 Delaware Avenue
Delmar, New York 12054
(518) 439-8311
New York State Office of Mental Retardation &
Developmental Disabilities (OMRDD)
44 Holland Avenue
Albany, New York 12229
(518) 474-6601
Commission on Quality of Care for the Mentally Disabled
99 Washington Avenue 10th Floor
Albany, New York 12210
(518) 473-7378
Mental Retardation Institute
Saint Jude Habilitation Institute
Institutes of Applied Human Dynamics
26 Legion Drive
Valhalla, New York 10594
(914) 948-3080
National Association for Retarded Citizens/US
P. O. Box 6109
2501 Avenue J
Arlington, Texas 76011
President's Committee on Mental Retardation
U. S. Department of Health & Human Services
Office of Human Development Services
Wilbert J. Cohen Federal Building, Room 4723
330 Independence Avenue, S. W.
Washington, D. C. 20201
(202) 745-7634
Metabolism
The process by which the body takes the food we eat and breaks it
down into elements and compounds that the cells can use to build and
repair tissue, for growth, and to produce energy.
Mitchell-Lama Housing
Initiated in 1955 under New York State Private Housing Finance Law,
Article 2, this program was created to stimulate the construction of
apartment housing for middle-income families, often including
persons who are elderly and/or handicapped, who were considered most
disadvantaged by the housing shortage at that time. (A State public
housing program for those of low-income existed since the 1920's.)
The objective was that the rental income from Mitchell-Lama housing
units would be sufficient to maintain them and provide payment of
bond debts (money that was loaned by the State and New York City to
private developers for Mitchell Lama construction). For more
information, contact the regional office of the New York State
Division of Housing and Community Renewal.
Model Project or Demonstration Project
A general term for a demonstration program funded for a limited
period of time. Such projects can be on a statewide, regional or
local level.
Multiple Handicap
Generally, this term refers to a person with two or more
disabilities. In relation to education, " multiple handicapped"
refers to a pupil with two or more handicapping conditions that
result in multisensory or motor deficiencies and developmental lags
in the cognitive, affective, or psychomotor areas, the combination
of which cause educational problems that cannot be accommodated in a
special education program solely for one of the impairments.
Multiple Sclerosis (MS)
Multiple Sclerosis (meaning many scars) is a disease that affects
the brain and the spinal cord. The brain sends messages through the
spinal cord to the muscles throughout the body to tell the body what
to do. When a person has MS, the covering (myelin) that protects the
nerves in the brain and the spinal cord is scarred so that the
message cannot always get through. Symptoms of MS vary greatly
depending upon where the sclerosed patches are formed in the central
nervous system, and might include eye trouble, speech problems,
partial or complete paralysis of any part of the body, tingling
sensation, poor coordination, unusual fatigue, and loss of bladder
and bowel control.
For more information, contact :
Multiple Sclerosis Capital District Chapter
421 New Karner Road
Albany, New York
(518) 452-1631
National Multiple Sclerosis Society
205 East 42nd Street
New York, New York 10017
(212) 986-3240
Muscular Dystrophy
This term is used to designate a group of muscle-destroying
disorders which vary in hereditary pattern, age of onset, initial
muscles attacked, and rate of progression. These disorders include,
but are not limited to :
Duchenne Muscular Dystrophy (DMD)-- one of the most common and
rapidly progressive forms of muscular dystrophy (a wasting away
of the muscle tissue) which develops early, usually between ages
2 and 6, in the large muscles of the lower trunk and upper legs,
and results in difficulty in walking and raising the arms above
the head;
Facio-Scapulo Humeral Dystrophy-- a disease of slow progression,
usually evident in the teen years, which begins in the muscles
of the face (facio), shoulder (scapulo), and arms (humeral) and
may sometimes result in involvement of the trunk and leg
muscles; and,
Myotonic Dystrophy-- a disease which usually affects adults that
is characterized by progressive weakness (dystrophy) and
inability to relax muscles after contraction (myotonia) and
which may include cataracts, diabetes (see term for definition),
and personality changes.
For more information, contact :
Muscular Dystrophy Association
810 Seventh Avenue
New York, New York 10019
(212) 586-0808
Myasthenia Gravis
A chronic neuromuscular disease (see term for definition)
characterized by intermittent muscular weakness of variable degree
and duration. It can begin at any age, but most often appears among
women in their 20's and men over 40. Any muscles may be affected.
Initially, those most commonly involved are muscles of eye movement,
facial expression, and eyelid elevation. In mild cases, weakness may
be limited to these muscles, and function is regained after rest. In
more severe cases, the disease may later affect muscles of the limbs
and of respiration, chewing and swallowing; strength may not improve
even with prolonged rest.
For more information, contact :
The Myasthenia Gravis Foundation, Inc.
Empire State Chapter 61
Gramercy Park North
New York, New York 10010
(212) 533-7005
The Myasthenia Gravis Foundation National Office
7-11 South Broadway
White Plains, New York 10601
(212) 328-1717
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